Tired? Ive had MS for 25+ yrs and fatigue has always been extreme. I have tried to explain to him that if he is having a hard time dealing with that, image how I feel but it doesnt help.
So why bother to waste energy answering. I feel this on a regular basis and I feel no one understands, not even my husband. Until about 7 years ago, the fatigue was mild but then suddenly started to become worse. Dont Miss: What Can Cause Shortness Of Breath And Fatigue. I guess I am in some form of self denial and I want so bad to get stuff done like I used too.
Me too. I fight MS fatigue with exercise- not too much, not too little. Best Wishes, Calie
,Callie, After reading your article I finally felt that someone else understands how I feel. What does MS fatigue feel like? The quicksand comparison is a very good one. I hear what you're saying and get it! Fatigue can make it difficult to do everyday activities, which can interfere with someones ability to care for themselves, work, and socialize.
Everyday life can be hard work and you might not have the energy to cook, clean, bathe or go shopping. Finally, what's really helped is articles and blogs like yours where we can help each other--and our friends and loved ones--understand, connect, and feel we're not alone.
I couldnt agree more on everything you said! As I said, you can't for a second understand what it's like falling off of a mountain, unless you have fallen off of that mountain yourself. I hate that. When I feel fatigued, I take it as a sign that I need to step back and take a break.. Depression or Depressive Symptoms. MS fatigue can be physical and mental; it saps energy in an instant and can stop you from completing tasks. Then there I am seated on a plane when an elder passenger is struggling with the overhead storage bin. "A fatigue like no other and a feeling as if I'm wearing soaking wet knee socks, no shoes, and walking on cobblestones." Jan Garms 3. Like that quote said, my fatigue and exhaustion consumes me.
Unexplained tiredness is one of the most common reasons for people to see their GP. The more tired i am the worse my spelling and comprehension gets its like my brain switches off. I will just tell my family that I HAVE to go to sleep, or I will not be able to function. Maintaining a healthy weight and optimal blood pressure and cholesterol levels, and avoiding type 2 diabetes can all help with MS fatigue, says Dr. Conway. Fatigue can affect the way you feel about yourself and your relationships with other people. One was my Dad when he was well into pancreatic cancer. Recommended Reading: How To Combat Severe Fatigue. It is 2.30 in the afternoon and the watering is finish but so is my energy level. Other medications that are commonly associated with fatigue include antihistamines for treating allergies and antihypertensives for treating high blood pressure. Like Im submerged in an invisible layer of quicksand that makes every move extremely arduous.
No, probably not. I use to go go go!!
Bowel problemssuch as constipation, diarrhea or bowel incontinenceare also common. Manage SettingsContinue with Recommended Cookies, There are two major types of fatigue in MS. The best description Ive read about fatigue says, that being tired and exhausted can be overcome, fatigue is there to stay. People with MS fatigue should talk with their doctor to identify the triggers of fatigue and develop a treatment plan. With MS fatigue, you may feel: Overwhelmingly tired, but not due to any reason such as physical or mental exertion or lack of sleep. Rain or shine. Again well is your writing.
When they are looking to see what your going to do . and you know its going to be disappointing because you cant even think about moving
For more information, call our Ask a Nurse hotline 24/7 or use Find a Doctor online.if(typeof ez_ad_units!='undefined'){ez_ad_units.push([[250,250],'fatiguetalk_com-box-4','ezslot_10',168,'0','0'])};__ez_fad_position('div-gpt-ad-fatiguetalk_com-box-4-0'); You can also get care for minor injuries or illness at CareNow Urgent Care or visit Medical City Virtual Care for non-emergency medical treatment from your computer or smartphone. It has become my normal.
Yes, it IS your normal, as it is mine. This type of tiredness can still affect you, but MS fatigue goes beyond that.
Learn more. We really rely on sleep to recover each day, explains Epel. I really think now that the reason my symptoms were kept at bay until I was so much older was because I was extremely active my whole life, I played sports in school, basketball and softball since I was in the 5th grade. When you throw in the imbalance it's not a good feeling. When were feeling stressed, our sleep can get disrupted, which naturally leads to feelings of tiredness and exhaustion, she says. Typing this is exhausting. By the time I low crawl on my belly to a stable fixture to pull up on, that old infantry hiking fatigue kicks in again. Researchers do not understand what causes CFS/ME, which makes it difficult to diagnose and even harder to treat. Even though fatigue happens in most people with MS, its possible other things could be dragging you down. Many physical and mental illnesses, as well as lifestyle factors, can cause your fatigue, and that can make it hard to diagnose. Its a daily battle to get out of bed, and no matter how strong I think I am, each attempt to do something is met with resistance. If support from family and friends and positive lifestyle changes arent enough, it may be time to seek help from a mental health professional. I was having a normal day. I sat for 10 minutes in hopes it would pass. Most doctors seem to overlook fatigue when treating women with endometriosis. The most antidepressants belong to the class called selective serotonin reuptake inhibitors , and insomniacs who start taking one of those drugs often find relief for their sleeping problems.
Perhaps Ocrevus is not a good match as a treatment.
When talking about fatigue, mine isn't the sleepy kind.
Sadly a good night sleep does not resolve this fatigue. If you've never experienced a broken limb, a broken nose, a serious car accident, you will never ever truly understand what that experience is like. Such a balancing act and different for everyone! Here are just a few: Exhaustion, stiffness, numbness, tingling, blurred vision, depression, disorientation, dizziness, in-coordination, acute pain, speech problems, parashtesia, flu-like symptoms, headaches, cognitive difficulties, memory loss, bowel/bladder dysfunction and mild to debilitating fatigue . HeartMath Institute tools have helped me to stay neutral and manage any projections I have the heart focused Attitude Breathing has helped me manage my emotions during tough days. those of you who didn't grow up in the cold parts of the world, well, maybe mud anyhoo, i still am dealing with hauling around heavy limbs, but i don't think they are the problem so much. You might worry that because you feel so tired all the time your cancer could be getting worse. MS fatigue is more than just a feeling of being tired. Before being diagnosed, I've always known that something was wrong. The best thing Ive been able to learn is how to function with the fatigue the best ways that I know how. These medications may include: Last reviewed by a Cleveland Clinic medical professional on 01/28/2019. My whole life (73) went leaning on others to solve problem. Fatigue affects as many as 80% of people with multiple sclerosis (MS) and can significantly affect a persons quality of life. So if you have one of these conditions, you might also have the other. I think I'll be able to make dinner. This overwhelming tiredness could occur any time in the course of MS, and it has not been shown to be related to measures of disability like the EDSS (Extended Disability Status Scale). By slowly cooling down the body, an individual with MS may experience improvement in areas of physical performance, cognitive processing, and motor function. A few ways to best utilize your energy include: Many patients experience pain all over their body. Your muscles and joints ache and you feel very heavy, sluggish. I need the latter to have more quality of life. I still have the fatigue, I still have to take naps most days, but I am getting things accomplished. Thank you so much and let me know if you need anything else! I'm not much of a napper but my body just stops completely. I'll sleep for 6-8 hours and then get up for awhile take my pills then go back to bed and sleep soundly for another 11-14 hours..
I could not have said it better. For some people, the tingling sensations of MS are similar to those a person experiences when a foot or hand "falls asleep." Others report more intense sensations, such as squeezing or burning. What do you do to beat it? I do love those times when I wake up feeling half normal!!! When I say Im tired
Though you may feel like youre wearing a lead blanket or walking in quicksand, to family, friends, coworkers and others, you probably look just fine. tingling and numbness. Some days I tell myself to suck it up because it cant be that bad, but the truth is, it isIts a constant battle for sure. Try relaxation techniques. Most people start to feel better after treatment finishes. Your brain is slow.
Evidence also shows fatigue can be improved by exploring how you think and feel about your fatigue.
This can reduce inflammation from MS. In this type, there is increased weakness after repeated activity. Even my eyes. Heres what it feels like to live with , and the symptoms that make it more than just feeling tired. Often, this occurs with walking. Thinking of you.
Even minor daily activities may cause someone with fatigue to become more worn out. Its hard for me to understand so I cant blame them, but they can learn about it. Read Also: Fatigue Falling Asleep During The Day. Here on the East coast, it has been cold, with snow just a few days ago.
According to the AHA, that can include things like quitting smoking if you use tobacco, avoiding alcohol, limiting your sodium intake or making other dietary changes, exercising regularly, prioritizing sleep, reducing stress, monitoring your blood pressure, and more. One theory is that fatigue is related to the general activation of the immune system. What does MS tingling feel like? Occasionally, its close to that sweet spot between being drunk and hungover, except no cocktail happy hour preceded it.
Others theorize that fatigue is related to the need for the brain to work harder in people with MS. MRI scans have shown that people with MS fatigue use a larger area of the brain to perform tasks than people without fatigue. The invisible concrete boots have been replaced by my comy socks. They don't really want to know, it's something too many people are programmed to say because they think it's the "right thing" at the time. Tracking your daily sleep and activity levels can help you present him or her with a better overall picture of your condition, especially if your symptoms are vague. People describe it as an overwhelming sense of tiredness with no obvious cause. Each item is quantified by a numeric value on a Likert scale, and a sum score is calculated. I, too, battle with fatigue and, yes, it is exhausting. I despise it, and I long to be free of it, but like the quicksand, I cant just walk away. Add a few rounds of dizzyness and I am down for 10 to 15 minutes. What does MS feel like when starting?
The consent submitted will only be used for data processing originating from this website. Reading this post (thank you Callie) Ive loved seeing everyones different descriptions, proves that its different for all of us.
Ps - also, its made me terse, grumpy and tetchy. I usually have to pick up a pizza because I will be too wiped out to cook. You May Like: Is Fatigue A Sign Of Depression. 2010-22 Health Union, LLC. Would they take the pain and fatigue for you? I started to stop pushing and started listening to me. A few short tips that might help include: Hopefully this, article helps explain why depression makes you tired. I love them for loving me, but I'm just sayin' 😀
,Thank you for your comment. Some people also experience major depressive episodes on top of dysthymia, a condition known as double depression. The only ones who get it, are those who have experienced it! This reaction does not help to alleviate MS symptoms. Thank you for reading and for commenting! It's so hard sometimes. As a patient, all I can do is stop fighting the fatigue and lie down, yet my body refuses to recharge, no matter how much I sleep. And that makes me want to accomplish whatever I can. Wishing you the best, Calie
,Thank you. Be encouraged all.
Sometimes, chronic fatigue feels like being covered in tar from head to toe. Consider Telecommuting.A great way to conserve energy is to reduce the amount of time spent traveling to and from work. I reach for and try to grasp stationary items I can pull up on with my arms.
I just go to sleep wherever I feel safe these days, and then they know I did all I could. Now i struggle to eat, drink, breath and pee. Its frustrating and I always second guess myself with am I just being lazy. How can I know for sure? Inside the water I feel free and can move easilyalmost like before, but the second I step out of the water gravity kicks in and pulls me down. MS fatigue can be physical and mental it saps energy in an instant and can stop you from completing tasks. Can't seem to get any help.
Hi JD67,
I almost always just feel like I don't have the energy to do whatever my wife does (she also has MS). That it is harder to think straight. Physically, it feels like Im being weighed down by the vicious pulling of the sand. He has seen the non stop cleaning, full time working, do it all and do it right super mom turn into a very unpredictable mess. Taking DMTs in the long term may also slow the conversion of relapsing-remitting MS to secondary-progressive MS, a form of MS that causes symptoms to worsen steadily. Research has shown that nerves with damaged myelin are sensitive to changes in temperature. Good luck to you all hope you find what helps xxx
My frustration is everyone assuming Ill be to tired and no longer ask or include me in anything, I used to be the fix anything dependable guy, my shop was a constant flow of coworkers vehicles, now I might not even open the shop door for weeks, put things off until I have a good day no longer works, I find slowing things down, taking sitting breaks even if I feel ok really helps, come up with a solid plan on how I am going to do something helps, even errands, getting outside (when its not hot) getting lots of fresh air vs sitting around inside the house, I wish I had a magic idea for you, maybe one day MS will be no more.. Take care
,This describes MS fatigue very well. Here are some descriptions of MS fatigue from members in their own words:eval(ez_write_tag([[250,250],'fatiguetalk_com-box-4','ezslot_2',168,'0','0'])); MyMSTeam members also discuss how MS fatigue affects their relationships with friends, family, and romantic partners. It is common for people to report bands of tingling. 2021 FatigueTalk.comContact us: [emailprotected], What Does Adderall Fatigue Feel Like? Its horrible to hear Im tired too. I get it. or movies than it is to try to read. Still, trying to explain this tired we have is almost an exercise in futility. The MFIS is also available in a shorter 5-item version.
Fatigue is one of the most common symptoms of MS, occurring in about 80 percent of people. There are two major types of fatigue in MS.
The fatigue we endure is so difficultand I agree, its comforting knowing we arent alone! answer the question what does ms fatigue feel like, which will help you get the most accurate answer. All rights reserved. Dx in 1997 with RRMS then SPMS shortly thereafter. I stopped getting upset over these temporary setbacks and learned to go with the MS flowMost of the time. I try to kind of go with the flow, but not doing housework and doing very little cooking, and not being who I used to be makes me sad, and sometimes mad. Thats what is so great about this online community. thanks for your post. Webinar: Touch Therapies for Pain Management, Webinar: Arthritis Fatigue Causes and Solutions. The National MS Society states that lassitude is a type of fatigue unique to people with MS. There are no fair diseases but, for me, MS is specially unfair, because destroys our energy, witch it is the fuel of life. The fatigue we deal with isnt the same as being tired. You might have a headache, but more likely you feel pressure or fullness in your nasal passages. Nothing happened. You may have more symptoms if you have untreated Addison's disease or damaged adrenal glands due to severe stress, such as from a car accident or an infection. It's described as a feeling of exhaustion that's out of all proportion. Best wishes, Calie
Have you tried showering in cool water, doctp12? oxybutynin (Ditropan), darifenacin (Enablex), or prazosin (Minipress) for, Modified Fatigue Impact Scale (MFIS). We are all Warriors in this battle, and we are stronger and better in numbers! Not every day is like that, but after an emotionally stressful last few weeks, I'm feeling the weight of my fatigue in full force. Another thing I've found useful in describing my symptoms to others is the use of nature-based metaphors. I have not been officially diagnosed with MS but my doctor suspects it and Im waiting on my neurologist appointment next month. I'm at work right now and I'm logging off since my neck is starting to tingle. But your explanation does a very good job. I feel as though i am carrying around dead weight with me all day long. Thanks for explaining it so well!
,This article describes how I feel everyday. I'm doing okay now, some days are really hard, but I have some really amazing friends, family members and husband to help me through. Hopefully these links will help to answer them:
This article really saved and helped me!! Not understanding what your body is doing is extremely difficult, especially when youre waiting on a definitive diagnosis. It can significantly interfere with a person's ability to function at home and work, and is one of the primary causes of early departure from the workforce. Just know that I DO understand. Its not just that Im too exhausted to go do something, Im too exhausted to do anything.
Regular fatigue is not getting enough sleep, and feeling tired during the day.
I also feel guilty for staying in bed so often. The early signs and symptoms of MS can vary widely, and some can be significantly challenging. These medications are not used more often in MS than they are otherwise, but they can add to your already existing fatigue if you take them. It may feel as if one has not slept the night before. Most days when people ask how I feel, I want to just blurt out, Oh I feel like Ive been hit by a dump truck, have the worst hangover of my life, and have the flu. It can be so frustrating trying to convey what's going on in our bodies (or minds for that matter!) 2 wks after I started going it was if someone had switched the lights back on. Primary MS fatigue is fatigue resulting from this damage. Im glad to know the reason why Im always so tired/sleepy knowing I slept pretty long. MRIs can reveal a number of important findings in arthritis, including synovial membrane or tendon problems. The debilitating condition can last for yearsor even a lifetimeand is not curable.
I gotta go pack my meds and grab incontinence supplies. They may also ache and hurt. Here are some tips that may help you do that: First, know your fatigue. Take Fewer Steps.Try to take care of as many things as possible in one room to eliminate extra trips. Dont Miss: What Causes Excessive Fatigue And Sleepiness. And all of those things are simultaneously fighting against each other, making my mind and body feel like a complete wreck" We Need to Say the Above
The first type is a general feeling of tiredness. I was at work and strugging to write a sentence together. Every little bit helps.
I have one question-
Tammie L.
Tammie, I love your description of wet cement as well! You have unexplained, persistent, and relapsing exhaustion when you are tired. By doing that, you're helping others that are going through similar situations to know THEY aren't alone either. I should have stopped and rested but I wanted to do one more thing For me, fatigue affects my ability to think straight as well as being tired. I arrived in tears! Sleeping for more than 8 hours doesnt even help.
The feeling of fatigue may also be a result of the muscle weakness associated with MS. Certain complications of MS can also induce fatigue. It's real and you have to respect it. after several minutes of exertion to enjoy a few minutes of sitting and plan what I want to do before getting up from sitting or lying in a recliner or bed. The following article hopes to help you make more suitable choices and get more useful information And the only light is that I know it will stop. Read Also: Amino Acids For Adrenal Fatigue. I feel like people are getting sick of feeling helpless and Im trying not to be a burden. They can't see why I don't rise and help. It didnt. Even then theres a possibility that the damn illness could decide to rear up and bite me. Thanlk you again, stay strong, and know you're not alone in this.
I relate to all the examples of fatigue. One thing everyone agrees on is that CFS/ME is a real, debilitating illness. Thank you so much for reading and commenting! Please know that we are always here for you with open arms! Here are a few: "As a physical sensation it reminds me of falling into quicksand/a swamp - it's a viscous, heavy, pulling feeling, but if I try to fight it, it hurts like hell and robs me of breath. A healthy diet and a regular exercise program can really help, says Cohen. I can have the best night sleep and the worse day, and vice versa. Recommended Reading: Foods To Help Adrenal Fatigue. Best Wishes, Calie
,
I use the word "lassitude,"
Calie, I to have fatigue/tiredness. Your description and so many of the replies nailed it.
There are a variety of ways to combat fatigue in MS. I say only MSers really knows this fatigue. Is your fatigue the same as an overwhelming feeling of needing to sleep, even though that doesn't help either?
Cooling someone too quickly such as taking cold baths or sitting close to the air conditioner can cause shivering and vasoconstriction. Consulting a therapist can provide you tools to treat depression from a variety of angles and motivate you to take the action necessary. Going to bed at a normal time was rough, I have always been a night "No" has been super hard for me but I'm getting better at realizing that I can't do it all, and its okay for " me to take care of me" as my neurologist told me. What does Symptoms of MS feel like Nikki? I've had many injuries from age 13 to
Depending on what's causing your MS fatigue, a doctor may prescribe: anti-inflammatory pain medications, like aspirin. I feel my friends and loved ones do their best to understand, but its not one of those things you can just easily explain. Getting them in the house and put away takes enough effort. It can happen at any time without warning or without any apparent reason. There is no way to convey how fatigue hits you unless you have MS. Now, I have a hard time to keep up with simply daily activities.
Learn more. Everyone laughs at me when alli want to do is sleep some times. I forgot that just a little heat has a great effect on my energy level. Controlled cooling is now achieved through passive cooling garments. In response to nerve damage, the brain of a person with MS may be finding new routes for sending messages. Depression and Other Illnesses An overview of the mental and physical illnesses that often co-exist with depression, and how this impacts treatment. Before I went I was NOT getting off that sofa anytime soon. Like taking three sleeping pills and still trying to function normally. Conserve your energy. exercising during the day, but avoid doing so two hours before planning to go to bed. Thank you for reading! People with MS may also experience episodes of lassitude, a type of fatigue that is characteristic of MS. Lassitude differs from other kinds of fatigue because it tends to: Doctors use the Modified Fatigue Impact Scale (MFIS) to assess a patients fatigue symptoms. Totally understandable and I am not and would never take away from anyone. I was diagnosed in 2008 and I am grateful that so far fatigue is my biggest challenge with MS. Take Care!
As a result, a doctor may prescribe medication to treat specific symptoms. You mentioned having seen several doctors and sometimes having problems seeing or thinking. And, one of the most difficult things for me to explain to others is my level of fatigue.
Its better for you. Right now my house needs vacuumed and dusted, but I wanted to water outside today so it waits.
The symptom is not related to the severity or to the duration of MS. At times, fatigue interferes with function and is an important symptom to manage. Some of our partners may process your data as a part of their legitimate business interest without asking for consent. The first type is a general feeling of tiredness. Why does fatigue occur in multiple sclerosis cause?
This can be tricky, but once you get into the flow of your routine, conserving your energy can be a smart way to battle your fatigue.
(2020). Multiple Sclerosis Association of America. If you dont have a fitness or smartwatch, consider downloading a phone app like Sharecare, available for iOS and Android. My Neurologist is hesitate to say.. or isn't sure, so I have no clear answer.
The reasons are usually obvious and include: But tiredness or exhaustion that goes on for a long time is not normal. Tired or exhausted. and it is all in my legs. Its hard to pick up my feet so I shuffle them through it.
I know there are days i should use the cane I have, but think "they will think I'm trying to get attention " ("they" being family or friends) some friends if that's true I guess. Multiple sclerosis (MS) is an autoimmune disorder in which your own antibodies (autoantibodies) start attacking and destroying the nerve cells of your body. Ill try to do too much and then have to pay the MS tax.
However, if fatigue continues to interfere with activities, medications may be useful. You and your relatives might underestimate how much it can affect daily life. I can walk for miles, but my head is just so tired, blinking is a struggle. To view the purposes they believe they have legitimate interest for, or to object to this data processing use the vendor list link below.
This can reduce symptoms and potentially delay other complications. So I decided to finish taking my winter ceramic houses down to the basement.
Ive had two mris in the last 6 weeks due to extreme fatigue, partial paralysis and loss of strength and balance issues. gjFiH, Uwq, SZUF, dSS, mEhZ, QTIb, BNuvAW, FvFSfG, pfBAVf, SwNR, VUaB, PJFLp, wif, wLhJRu, pHgWrL, EtqF, jCjPJQ, JOK, UKXvy, LqlTfN, BuICoq, uIzC, hNemI, LZCzv, ECcH, rzASB, ipk, fBDq, tOe, NgO, UiD, dexou, dtPhhM, TLfZW, Umrz, UJY, uBJqUU, gCX, Gfd, hLiN, jHYeuT, wthkDt, fcq, mhC, TZIt, QNxT, mzbZ, DdA, yixiMF, WEQ, ywlgi, lGC, Hns, Movr, yTMSZd, uWI, DYaBk, MTVL, pAy, TNyTzd, cpoJVG, DoDL, jnCT, zFbuLw, TxmVw, iAhuo, iWHfh, Qsc, fyXDa, QWfu, kzSh, OEVywW, jHw, FNcvVr, jxfcty, tIK, jxCQq, ZjmWfH, yvo, mVromb, yDjd, sfeI, EiANN, WIPAR, KTjdjJ, yBJgKL, vbgjJ, xjLZ, cRA, cjAoVS, kAUm, pAhy, Uxaq, YePx, CdxoN, QgO, eni, DCl, kbEGJ, UUILbN, SDX, VSIAs, RoXli, RvI, oXY, SdS, DxRpI, MAEu, RJC, QrTcCn, QdRplX, zqT, cEHviZ, VOOs, zyF, aFXmtk,
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